Anna y su hijo Patrick

Anna Norton es la Gerente de Operaciones de DiabetesSisters. De padres cubanos, Anna nació en el norte de New Jersey y más tarde se trasladó a Miami, Florida, donde asistió a la escuela secundaria. En agosto de 1993, pocas semanas antes de inscribirse como estudiante de primer año en la Universidad de Florida, Anna fue diagnosticada con diabetes tipo 1. Después de años de manejar su condición a la “manera antigua”, Anna decidió tomar el control de su diabetes y se convirtió en su más grande defensora. Con la ayuda de un médico compasivo y progresivo, Anna comenzó a usar una bomba de insulina en 2000 y nunca ha mirado atrás. En 2010, añadió un monitor continuo de glucosa a su manejo. El mayor triunfo de Anna es llevar una vida plena, incluyendo casarse con su esposo, Mike, en el año 2005 y dar la bienvenida a su hijo, Patrick, en el 2007.

Anna tiene una licenciatura en Desarrollo de Recursos Humanos con especialización en Educación de la Universidad de y completó su trabajo de posgrado en la Universidad Internacional de Florida en Educación de Adultos: Capacitación y Desarrollo. Anna ha dedicado su carrera profesional al sector sin fines de lucro, gestión de voluntarios y recaudación de fondos para centros médicos y universidades.

Anna se involucró con DiabetesSisters cuando se mudó a Cary, Carolina del Norte a finales de 2009. Asistió a su primer “Conferencia de la Mujer” en 2011 y trabajó como voluntaria para la conferencia EL año siguiente. Anna está muy agradecida por esta organización y el grupo de mujeres activas que reconocen la necesidad de apoyo y van más allá de las expectativas para asegurarse de que las necesidades emocionales de las mujeres con diabetes sean satisfechas.

En su tiempo libre, a Anna le gusta pasar tiempo con su esposo e hijo. Junto con su familia, ella toma un peregrinaje anual a Disneyworld. También le gusta leer, ir al cine, coser, viajar, hacer aeróbicos acuáticos, y es fiel hincha de los Gators.

DSMA
http://dsmalive.com
http://diabetessocmed.com

Sean Gallagher is Senior Director of Marketing at Insulet Corporation, where he develops solutions to help make diabetes a smaller part of everyday life through the OmniPod Insulin Management System.

Sean, who wears an OmniPod, was diagnosed with Type 1 diabetes in March of 1979. Sean’s 82-year-old mother and his younger brother are both leading healthy lives with T1D. He likes to volunteer his time in the diabetes community to help parents of T1 kids dispel the fear they harbor regarding their kids’ future.

Prior to Insulet, Sean was Executive Vice President at MarketCulture Strategies, a management consulting firm where he worked with clients in specialty chemicals, telecommunications, computers and peripherals and other industries. Previously, he spent more than two decades in various product management and marketing leadership roles at companies including CR Bard and 3M.

Sean earned his Bachelor’s in political science from the University of Massachusetts and his MBA in marketing from Babson College. 

 

Crystal Crismond Jackson

Crystal Crismond Jackson is a member of the American Diabetes Association (ADA)’s Legal Advocacy staff located at ADA’s national headquarters in Alexandria, Virginia and Director of the Association’s Safe at School Campaign.  Crystal is considered a national authority on the rights of students with diabetes and has spoken at conferences and forums throughout the United States and internationally on how to effectively advocate on behalf of students with diabetes, training hundreds of parent advocates, attorneys, and health care professionals.

A parent of a child with diabetes, Crystal began her advocacy as a volunteer for ADA when she and another parent advocate teamed up to lead the passage the first state diabetes school legislation in the country which provides comprehensive coverage for students with diabetes in Virginia.  Simultaneously she pursued a complaint with the Office for Civil Rights of the Department of Education resulting in a settlement that is a nationwide model for safe and effective school diabetes care.

Crystal, a former litigation paralegal, is a contributor to many journal articles and diabetes publications including the U.S. Department of Health and Human Services National Diabetes Education Program’s school guide entitled  “Helping the Student with Diabetes Succeed: A Guide for School Personnel” and the ADA’s  treatise on school issues: “Legal Rights of Students with Diabetes.” Crystal is a member of the Virginia Diabetes Council and serves on a number of other diabetes and youth advisory boards. She resides on Maryland’s Eastern Shore.

Tune in to DSMA Live, tonight at 9 PM EST at www.blogtalkradio.com/diabetessocmed 

We highlighted a few things from the diabetes news before speaking with our guest. November is so filled with diabetes events it was a struggle to comment on just two. Lorraine chose @AbbyBayer’s Photo-a-Day challenge encouraging ‘talking’ about diabetes where a picture is worth a thousand words – social media photos. SixUntilMe has more on the post #NDAMphotoaday. Bennet spoke about a recent study that shares the good news that diabetes mortality has declined in the decades since the late 60s and wondered, ‘How do we keep empowering that kind of success?’

Research is one path to that success and coincidentally that is exactly what our guest is all about. Joyce joked that she was destined to become a pediatrician. It is her family business with a parent and  a sibling both being physicians. She loves kids and became interested in diabetes in her education rotations and those focused her career. While she is a specialist, she says she is not a diabetes expert. She sees a patient 20 minute,s 4 times a year, they live with type 1 24/7/365. We explored that distinction and how Glu fits into the picture with her. Here is a short introductory video of both Joyce and Glu.

We talked about how seeing the patient as an expert empowers them and flipping around the typical patient physician relationship.

We explored MyGlu.org as a means of connecting patients and research to find and share successful ways of living with type 1 diabetes. MyGlu.org is a HIPAA compliant addition to the DOC that in part seeks to connect the peer-to-peer patient community with other parts of the larger diabetes community. Glu is one part of the larger T1D Exchange that includes research and a bio bank. Here a presentation that details those parts of the T1D Exchange:

JDRF Research Summit 2012: T1 Exchange from thebetes now on Vimeo.

The research goals of Glu are to use new media as a way to accelerate research timeframes, give more accessible access to research and have the community help define how research can help T1Ds. Joyce mentioned academic peer review and said that Glu is a means of bringing in patients and patient discussion into that review process. I see Glu as an opportunity for us, the patient community, to move closer to and bring our expertise as people who live with type 1 to a relationship of participation with researches that is more one of researchers’ colleagues of than disinterested subjects of studies.

Glu’s first research project is on emotional support and the challenges of T1D. The survey is drawn from Bill Polonsky’s work. In full disclosure, Bennet participated a small amount with communication ideas but all real brilliance was the result of Bill, Joyce and others.

We talked about participating with research. Glu certainly is a step to help build a closer relationship between research and people with diabetes, including parents.  Some careful communication to keep kids safe in participating will be needed before kids studies happen there, but we can expect that will be coming. Participation in research requires informed consent. People with diabetes and parents of kids with diabetes need to understand the research and process clearly before participating.

Glu U at the bottom of the MyGlu.org page is where people can find research. The support and diabetes study will only be up a little longer. Act now. Beyond Glu, people interested in becoming more involved with studies can search for diabetes studies at http://www.clinicaltrials.gov.

Our conversation on research was intended to help people understand that research is a critical part of the process of better care. That good communication of better is an important part of the evolution of lower health complications. Joyce along with being a diabetes specialist is an expert in allergies – that is she has kids living with serious food allergies. We spoke about the following video she created with her son to help communicate his health issues with his school.

I think this is a brilliant piece of health communication. Certainly the community has similar communication needs as part of our progress to more successfully living with diabetes.

On November 5th the topic diabetes research. Specifically social media, type 1 research and Glu. Our guest is Joyce Lee, Director of research at Glu.

Join us online at  (760) 283-5150 9:00 PM
http://www.blogtalkradio.com/diabetessocmed

Here are URLs we expect to talk about on the show:

Glu
https://myglu.org

Glu U
https://myglu.org/glu_u/

Meet Joyce: embed the video from youtube here is the link.

http://www.chear.org/people/faculty-investigators/joyce-m-lee-md-mph
http://joycelee.me

News:

Lorraine’s
Big Blue Test
http://www.bigbluetest.org
https://itunes.apple.com/us/app/big-blue-test/id570887902?mt=8 

Bennet’s
Diabetes Deaths Fall 61% Among Youths
http://www.ydmv.net/2012/11/diabetes-deaths-fall-61-among-youths.html

DSMA
http://dsmalive.com
http://diabetessocmed.com

• Abby is doing a fun “photo a day” project during November, where each day she’ll post a picture around a particular diabetes-focused theme (these are always fun to join in on – and she says the more the merrier!).
• Allison launched Blue Cupcakes, a line of diabetes-inspired handmade letterpress greeting cards.
• George is updating his Facebook status messages with a diabetes related fact for each day of the month.  For example, today’s message says: “Day 2 – There are many different types of diabetes. Don’t assume you know which type someone has. When someone tells you they have diabetes, ask them which type. If someone asks you what type of diabetes you have, be sure and thank them for asking a great question! It’s a win/win people.”
• Big Blue Test – test your blood sugar, get active for a few minutes, then test your blood sugar again.  Participate whether you have diabetes or not, participate as many days as you can, and as many times per day as you can.  Each entry that happens before 11/14 will help PWD’s in need.  There is even an iPhone app (sorry kids, I couldn’t find an Android app).
• World Diabetes Day Postcard Exchange - an initiative to connect people affected by diabetes from around the world with each other during the month of November in celebration of World Diabetes Day and Diabetes Awareness Month.
• Blue Fridays – A simple idea with big potential.  Wear blue on Friday’s to represent diabetes awareness.
• International Diabetes Federation World Diabetes Day - So many events and monument being lit around the world (over 360 different buildings as of this writing).
• World Diabetes Day, Twin Cities – In the Twin Cities area (Minneapolis/St.Paul) Scott and many of the local PWD’s are getting together at the Mall of America  to celebrate and raise awareness.  If you’re in the area, we’d love for you to join us!
• 16 Hour DSMA Twitter Marathon (#WDDChat12) on World Diabetes Day – details coming soon at diabetessocmed.com.

– Stream the show, Download the MP3 (~15MB), grab the podcast via iTunes, or listen below.

In this episode of DSMA Live we got to know Hope Warshaw, a brilliant educator and dietitian who has been working to help people with diabetes for a very long time.  She has written a stack of books (see above) and has contributed on countless projects.  Chances are, you’ve been helped by Hope without even knowing it.

She has long been an advocate for building bridges between health care professionals and diabetes online community, and respects the work and effort all of you put in to tell your tale and share your story.  She’s even created a great resource on her website (hopewarshaw.com) that is all about connecting with the diabetes online community (DOC).

This show barely scratched the surface on all that Hope does, and I do hope you’ll listen and get to know more about her.  She’s a great person and we are lucky to have her working so hard on our behalf.

– Stream the show, Download the MP3 (~15MB), grab the podcast via iTunes, or listen below.

Sophie, Laura, Nate and Emma

It is my experience that parents of children with diabetes are rocks; pillars of strength in their families. This is not  by choice, but through necessity.

Owner, Hope Warshaw Associates, LLC

www.hopewarshaw.com

Twitter: @hopewarshaw

Facebook (like): /EatHealthyLiveWell

Hope Warshaw is a nationally recognized dietitian and diabetes educator. She applies nearly thirty-five years of expertise in her work as an author and freelance writer, media spokesperson, consultant and diabetes educator. Hope is most well known for her expertise in the areas of healthy restaurant eating and diabetes nutrition management. She offers practical solutions to healthier eating to individuals during counseling sessions or to millions through varied communication and social networking vehicles.

As a freelance writer, Hope wrote her first book, Eat Out, Eat Right, in 1990. It’s sold over ½ million copies. Hope’s award-winning, best-selling consumer books published by the American Diabetes Association (ADA) include: Diabetes Meal Planning Made Easy, 4th ed; Guide to Healthy Restaurant Eating, 4^th ed; What to Eat When You’re Eating Out, 2^nd ed; Complete Guide to Carb Counting, 3^rd ed; Real Life Guide to Diabetes and The Diabetes Food and Nutrition Bible. Hope has developed an app named EatSmart with Quantia Communications. The app is a series of narrated videos focused on healthy eating with diabetes.

Hope has written consumer articles for diabetes magazines including Diabetes Self-Management and Diabetes Forecast. She is currently the contributing editor for Diabetic Living, Better Homes & Gardens, consumer magazine and Diabetic Living Online website as well as a member of their editorial advisory board. Hope has authored professional articles in Diabetes Care, Journal  of the Academy of Nutrition and Dietetics, Diabetes Educator and Nutrition Today. She’s the co-author of several ADA books for healthcare professionals including: Practical Carbohydrate Counting: A How-to-Teach Guide for Health Professionals and wrote a chapter for the ADA book Diabetes Nutrition Therapy, published in 2012. Hope is a sought after speaker who regularly presents at association annual meetings and nutrition and diabetes symposiums.

As a media spokesperson Hope has promoted her books and better-for-you food products on media tours. She has appeared on Good Morning America, CNN, Graham Kerr’s A Gathering Place, TV Food Network, Lifetime Cable and others. She has conducted hundreds of interviews for print, radio and websites. Hope has been quoted in newspapers and magazines including: TIME, HEALTH, PREVENTION, USA Today, Los Angeles Times, San Francisco Chronicle, Washington Post, Washingtonian, CHILD, SHAPE, Good Housekeeping, Reader’s Digest, Men’s Health, Fitness and others.

As a nutrition and diabetes consultant, Hope has worked with companies, such as McNeil Nutritionals, LLC, a Johnson & Johnson Company; National Starch Food Innovation, PRESENT e-Learning (PRESENTdiabetes.com), Perrigo Diabetes Care, Quantia Communications, and others. Hope has worked with PR companies, such as Fleischman Hillard, Inc., Paine PR, Edelman, RF Binder, Porter Novelli, Splash LLC and Hunter PR.

Hope demonstrates leadership abilities in volunteer positions for several Academy of Nutrition and Dietetics  dietetic practice groups and the American Association of Diabetes Educators. She currently serves on AADE’s Board of Directors, 2011 -2014. National awards include: American Dietetic Association Foundation’s 2002 Award for Excellence in Consultation and Business Practice, American Diabetes Association’s 1999 Outstanding Community Service in Reaching People award and the 1993 Diabetes Care and Education Dietetic Practice Group’s Distinguished Service Award.